【2025/1/11】Hiroshima University Kiteminsai-Lab(on site venue)(Hybrid) ELSI Workshop “Considering Hereditary Tumors and PGT-M Together with Those Involved”
In this workshop, we will examine the challenges and benefits of the current PGT-M (preimplantation genetic testing for monogenic diseases) application system in Japan from the perspective of individuals affected by hereditary cancer. As we enter the era of personalized medicine, it is anticipated that more individuals with hereditary cancer will take an interest in PGT-M in the near future. To address this, the workshop aims to bridge informational gaps and ensure that these individuals have access to appropriate knowledge. Additionally, we will provide a platform for affected individuals to lead discussions on the current state of affairs.
The workshop will feature presentations by four experts on hereditary tumors and PGT-M, followed by active discussions with participants. A representative from a patient advocacy group will share insights into the current situation, including insurance coverage for genetic testing, and discuss the anticipated increase in PGT-M-related inquiries within their organizations, along with strategies and future prospects for addressing these issues. A medical professional will provide an overview of the techniques involved in preimplantation genetic testing (PGT-A, PGT-SR, and PGT-M), focusing on their safety, patient burden, and historical background. An individual who has undergone the PGT-M application process through the Japan Society of Obstetrics and Gynecology will share their experience, including an outline of the system and the challenges encountered during the process. Additionally, a researcher who underwent PGT-M abroad will discuss their experience, incorporating ethical perspectives.
On the day of the workshop, we aim to create an opportunity for participants to share and deepen their understanding of these issues and explore future directions.
For more information (incl. Registration Form)
- The general public is requested to register using the URL/2D code provided on the poster.
- We kindly ask media representatives to register via the contact email address listed below, by December 25th, 2024.
[Contact]
Center for Collaborative Sciences, Hiroshima University (E-mail: cont-01[at]hiroshima-u.ac.jp)